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Sunflower Pharmaceutical introduced drugs for children rare diseases, experts: 20 million rare patients, children are the hardest hit areas

via:新浪科技     time:2021/12/17 22:01:05     readed:121

Sina Science and Technology news December 17 evening news, Sunflower Pharmaceutical Group and Indian multinational pharmaceutical enterprise Dr. Reddy Laboratory reached strategic promotion cooperation of two children rare disease drugs. Ding Jie, chairman of the Rare disease Branch of Beijing Medical Association, revealed that China's 20 million rare patients, 50% of rare diseases in childhood onset, children are the disaster area of rare diseases.

"In May 2018, China released its first catalogue of rare diseases. Although it only contains 121 species, it is far from enough in terms of rare diseases as a whole. Rare diseases should have four or even five digits. The first catalogue in China only contains 121 species, but this is a milestone. "Ding Jie talked about.

Statistics from the 2019 China Report on Access to Medicines for Rare Diseases show that the number of patients with rare diseases in the world has exceeded NBSP; 2.5 & have spent One hundred million, nearly NBSP; 50%  For the children. There are some known rare diseases in the world. 7000 & have spent A variety of, less than; 10%  Have an approved treatment drug or regimen. There are more than 20 million patients with rare diseases in China, and more than 200,000 children are born with rare diseases every year. At present, more than 90% of rare diseases lack effective treatment, and most patients need to take medicine for life.

Ding jie said that the biggest problem of rare diseases is the lack of doctors and medicines. Her research found that the longest misdiagnosis time of rare diseases was 33 years. The strategic cooperation of Sunflower Pharmaceutical "aminohexenoic acid powder" mainly treats infantile spasm (IS); Another drug, Trientine hydrochloride capsule, is for the rare disease "Bronze baby". (Dan)

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